With a Heavy Heart
With a very heavy heart, I’m coming to grips with the fact that my best friend in this cancer world has passed away. She was too young, too tough, and too spirited. She fought with every ounce in her body, for herself and for her family. She wanted to live. And she’s not alive anymore.
It sickens me. It’s devastating to me. And I’m sad beyond measure. I knew that her health was declining, but I refused to give up. The last time we talked, I told her to not give up for a second. I told her to keep fighting. I told her she would make a comeback and that I believed in her.
But there was no comeback. And I’ve now entered a world in which I’ll never talk to my buddy again. Just thinking that thought makes tears well up in my eyes. I know it must be a million times worse for her family, and that pains me too. She was such a force, a bright and optimistic and truly good person. And I miss her already. I miss her so much.
I know what she’d tell me if she could. She’d tell me two things. 1) To live my life to the fullest and 2) to beat the hell out of cancer.
I’m in Dublin right now, and I’ll be spending New Year’s Eve in London, my favorite city in the world. I’ve had an incredible couple of days here in Europe and I’ve got over a week of vacation ahead of me. I am living my life to the fullest and I’ll continue to do so with her memory in my heart at all times. Living my life to the fullest is well under control.
And now, more than ever, more than I could ever imagine, I am determined to beat this ugly, vicious disease with every drop of blood in my body. Obviously, I will continue to take good care of myself in my own battle with cancer, but my goals go far beyond my own survival. It’s important, but it’s only part of the ultimate goal.
In honor of my dear, sweet friend, I am more determined than ever to be a part of the force that really beats this disease. That beats it for all of us. That ENDS IT. My big project with Dr. Lenz kicks off next year, and not a moment too soon. With my friend’s memory in my heart and at the forefront of my mind, I will use every skill and talent that I have to make this project successful, which will spell the beginning of the end for cancer. I will not quit. I will not doubt myself. I will not stop working. I will not stop at all. Not until I’ve beaten the hell out of cancer in every sense of the word.
I will take the pain I feel and turn it into something good, something productive, something that will change the world and make it a better place for everyone and especially for cancer warriors. I miss my friend already, but I will think of her every single day. She’s not going anywhere in my heart and mind. And she will be a part of our project. She will be our guardian angel. With her help, we will succeed. Together, we will beat the hell out of cancer.
Rest in Peace to my rock star. I love you, warrior. I love you, friend.
Merry Christmas!!
Every morning, it's the same routine. I wake up -- usually before my alarm goes off -- and smile, thinking about all the things I plan to do and excited to get going. Like a kid on Christmas morning, I can't wait to get up and see what the day has in store for me. I can't wait to see and talk to my loved ones. I can't wait to sing in the shower and in the car. I can't wait to shoot hoops and slurp minestrone soup and dance around to hip hop music (either actually playing or in my head) and laugh my butt off. I can't wait to live life.
Christmas morning is even more special. It's like I can feel the love and happiness emanating from the hearts of my family and friends, and it fills my own heart with pure joy. It's special and unique. It's Christmas.
On this Christmas Day, I'd be remiss if I didn't take a moment to reflect on the many blessings in my life. My health: this crazy body of mine that has endured so much yet simply gets stronger with each chemo treatment. My home: my first house, a beauty in the Hollywood Hills made more beautiful by all of the memories (including huge parties) we've made in it. My post-Christmas trip to England and Ireland: another adventure with my "three nurses" that is bound to create fun and wonderful memories (how could New Year's Eve in London not be amazing?!). My family and friends: the people who make up the bedrock and the foundation of who I am, the beautiful souls who enrich every moment of every one of my days, the crew that has my back through thick and thin. My fellow cancer warriors: the people with whom I have an unbreakable bond and individuals who inspire me to fight cancer on every front. My doctors: the brilliant and compassionate men who have cared for me and collaborated with me in our shared goal of keeping me alive and well. My huge, huge plans for 2013: the project that will be my great contribution to the world and an incredible partnership with my greatest collaborator, Dr. Lenz.
This Christmas, it is overwhelmingly clear to me how blessed I am. It's crazy how blessed I am. And I am truly grateful.
My Christmas wish for all of you is to recognize the blessings in your life and to be grateful for them. Life is not easy and simple for any of us -- hey, some of us even have cancer -- but we are all blessed. Find the joy in your life and guzzle it down like some (vegan) egg nog. Tell your loved ones that you love them. Laugh, love, and live. And enjoy this wonderful day.
I love you all. Merry Christmas!!
Chemo Round 41
Chemo Round 41 was one of the best rounds ever…and when you’ve had 41 rounds, that’s saying something. As I mentioned last time, Dr. Lenz and I are tinkering away at my chemo regimen in an attempt to make things as smooth and easy as possible.
This time around, we kept the steroids at their last-round levels (I’m taking 15 milligrams of Decadron), changed my anti-nausea medication (to Aloxi), and got fluids while I infused with my chemo drugs. On top of that, I hydrated much more than usual – chugging a couple of coconut waters on Monday along with my normal drinking diet of juices and herbal tea. I was convinced that if I fought the chemo side effects – all of which are dehydration-related for me -- before they came around, I could get through chemo easier than ever before.
My plan worked like a charm. The sick headache that usually comes on Monday and Tuesday nights didn’t come. No mucous-y saliva this time around, either. I spent many productive hours on the computer on Monday and Tuesday, ate like a champ, and slept soundly. And by Wednesday morning, when I’m usually dragging and interested in napping all day, I was up, showered, and putting on my makeup by the time my mom came over at noon. Pretty awesome, right? I was psyched.
My mom was over to take me back to Norris for more fluids. Like last time, I knew that if I got fluids on Wednesday, I could sail through Thursday. And again, my plan worked well. I cuddled in my bed at the Day Hospital, intravenously guzzled a big bag of fluids, and made it home in time to watch the Duke game. I was in the office on Thursday and haven’t looked back since.
The mad scientists (me and Lenz) have tweaked the formula just right. FOLFIRI + Avastin along with our clever changes are working like a charm (my CEA continues to be stable) while the side effects are becoming less noticeable. The ultimate goal -- which we are actively achieving -- is for chemo to be just a blip on my radar, because I can’t be sidelined for long in 2013…not with the big plans I have in store.